Steve Offutt & Lucy Bowen

STEVE & LUCY

I was diagnosed with Young Onset Parkinson’s Disease in 2014 at the age of 48. I have been a skier and cyclist for most of my life. I love the speed, the community and the athleticism of these silent sports. 

And then I lost them both to Parkinson’s Disease.

Skiing was the first to go.  I could not initiate turns equally on both sides, and it felt like I suddenly lost the ability to turn left. It became dangerous and I had to stop.

Next, I lost cycling. My legs fell out of sequence when I pedaled –  stubbornly churning at different rates and fighting each other. Cycling became a chore – an exercise in frustration – and I had to stop this too.

But I was not ready to give up on these two loves.

Medication calmed my misfirings and training helped to restore balance and strength. With preparation I can now cycle again. I go as fast as I can, play in the wind, conquer hills, race with no finish line. The joy is back.  I train intentionally, with the goal of improvement, and my skills today are the best that they have ever been.  In 2019 I co-founded a Parkinson’s cycling group called the Rigid Riders to motivate people with Parkinson’s to take charge of their symptom management through intense exercise. In 2022 I took this up a notch and  collected with some friends to create the Spinning Wheels Tour to ride bicycles across Canada (almost 8,000 km/5,000 mi.)

I can also ski again. And even though I am a little more cautious now, I consciously savour and appreciate each turn.

Especially to the left.

 

Seve & Lucy Bowen is a Certified Dance for PD Teacher who will be presenting at the WPC in Phoenix. She has been teaching Dance for PD for 18 years, first with her eponymous troupe, Bowen McCauley Dance Company, and, since 2021, as Director of Dance for PD – Mid-Atlantic hub. The Mid-Atlantic hub currently provides nine free, weekly dance classes to persons living with Parkinson’s and their care partners at a variety of venues, including the Kennedy Center and The Washington Ballet. Steve is her fiance and manages Strategy and Operations for the hub. Together they have bicycled in the Pacific Northwest, Spain, South Dakota and frequently in Virginia/DC/Maryland near where they live in Arlington, VA. Prior to meeting in 2022 they both were long-time bicyclists, and they love sharing the joy of bicycling together. They are excited to be able to join the ride, on their tandem, for the last few days into Phoenix.

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